AML Round #2

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Wednesday, June 15, 2011

Remembering Lee Ann Lapsky (4/8/10)

Remembering Lee Ann Lapsky

I am at a loss for words. Steve and Lee have been passing friends of mine for many years but it's the last few months that have opened my eyes to what an amazing strong jewel miss Lee has been. She was dignosed with lung cancer last summer, I hadnt been a large part in their lives but by fate and grace I was able to spend a lot of time at the hospital fighting my battle while Lee was there fighting her's. The incredible strength and grace that Lee exhuded kept me going everyday. I am so very blessed to have been able to spend that time to get to know her. She, in her selflessness, joked and kidded with me about our bad hair days and all the crap cancer has thrown at us.

I know that she is in a peaceful place, and for that I am so grateful, she was in so very much pain. I just wish there was something I could do to bring more honor and acknoledgment to her fight.

Hold your loved ones tight, love them like there is no tomorrow and pray that just 1 person is spared the pain this woman went through.

I will miss you my friend!!!

Saturday, June 11, 2011

Hair today gone tomorrow

I am so very frustrated with the hair situation right now.  When I was first dignosed with AML in Dec 09 I elected to shave my head... the thought of waking up every morning to shoulder length clasps of hair in my bed depressed me greatly, the thought of gobbs of down my back hair clogging up the shower still turns my stomach.  So I just got rid of it ALL, at the time I had a very one track mind and didnt think about donation tho through my recent readings they probably wouldnt have taken it anyway since I dyed my hair..... I had infact paid $100 for a wash cut, color, style, and wax.... what a waste of money ROFL.
So here I am on day 1 of my new induction chemo round and I really want to do something more productive with my hair this time......BUT I have searched and searched and searched I can not find a place that will take donations of shorter hair.  Mine is between 5"-7" depending on where, I have not cut a snip off of it since I shaved it that fateful day. 
This is my desire.  I want to cut it in some style of buzz cut, pretty short but not skin bald and then dye it some crazy color, I am not sure what yet but I am leaning towards orange since it's for leukemia awareness.... crazy I know that I just think it would be so fun and funny to show up at Emory like that.  DH has told me that if I do that he wont go out in public with me.... that party pooper

Monday, June 6, 2011

Bad news travels fast....

This was suspose to be my 1 year remission anniversary on June 2nd but things didnt go quite like that....

I am pretty sure that I have contacted just about everyone besided my kindergarden teacher and the next door neighbor I had when I was 3. But for those who keep up through this source I will share all the dark and devistating news of the week.

The short version is that I found out at 4pm Friday 6/3 that I have relapes and will be needing a bone marrow transplant after all......

The long version. Tho I have been suffering ups and downs with my health this past year things have been going pretty well. When I went for my monthly blood work in April Dr Nic noted and told me that my white count was somewhat low. He asked if I had been sick and tho I have many cronic issues I hadnt had any real illness, he shrugged it off and sure enough about a week later I got a sinus infection/ear infection cruddy stuff. So thinking that was the cause of the bad count we proceeded with my normal monthly appt. I went in on May 17th and my white count was even lower than before, to the point of being dangerously low now. He started to seem concerned and decided to have me come back in 2 weeks and be rechecked since it just wasnt making sense. Well on Tues May 31st I went in and things had just begun to bottom out, my WBC is below 2, my ANC is 0.5 (normal value is over 1000) and my Hem count which had maintained a steady 14.9 for 11 and 1/2 months was down to 10. Nic scheduled me for a STAT bone marrow biopsy on 6/1 which was miserable but not worth going into... I got the call last thing Friday that the results show that the AML has returned. A bone marrow biopsy after high dose chemo and possibly raditation is the only treatment... there are lots of decisions and plans to be made. I am not sure what source I will use to keep people updated but I will be with my computer throughout my new journey with the devil AML much love and prayers to all my beloved friends and family