AML Round #2

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Sunday, February 27, 2011

Why I really dont like weekends....

I am sure at some point or another my friends have wondered why I am always so "anti' weekend when it comes to my status updates and comments.  To be honest I feel pretty bad about it but the weekends just wear me out and by Sunday night I am sore tired and in a bad mood.  I do fine during the week but my threshhold is about 4 hours when it comes to running, being jumped on, body slammed, hit, kicked, pounced on, and in general beaten up.... after that I am ill and ready to take a nap or a hot shower or just simply grab my car keys and run... I know this isnt Sarai's fault she's 3 and 1/2  it's more the OTHER half's fault.. it's him that doesnt help or give me a break or pick up the slack so to speak.  UGHHHH 



Wednesday, February 23, 2011

14th month oncology check-up....

I went in to see Dr. Nic yesterday.  As you may have read in my previous post see here I called and moved my appointment up by a week because I have been feeling so fatigued. 
Well the incredible news is that all my "leukemia signs" are great... my white and red counts are perfect and tho a little low my platelets are good too.
The frustrating news is that I still have two types of anemia: Megloblastic and Hemolytic... I wanted to research these before posting so I could explain them in normal english.  Essentially megloblastic anemia is linked to B12 deficiancy, I am still unsure as to if taking a suppliment will work for this, we are going to try one month of oral B12 and then go to injections if that doesnt work.  Hemolytic anemia is where the red blood cells are deformed and/or broken in some way, this can be a product of the chemo and also of cronic pancreatitus (which can also cause the megloblastic kind) so I am double down with this.  On the flip side my body has excess iron, for some unknown reason it's there but it's not being absorbed and used like iron should be.  So with all this in play my fatigue and ill feeling are completely understandable.
Dr. Nic was very anxious yesterday, he told me that this is a time of "high alert" that between now and my one year aniversary in June he will be watching extra close for signs of relapse.
I was a little disapointed because I thought that I had already hit my 1 year milestone (thinking they were basing the year on dignosis not point of remission) but what's a few months right?!
If you'd like to see pics from my journey with AML please check out my previous post . I spent several hours on it only to have it pushed to back pages when I posted new entries.....
much love and prayers to those who keep up with me and lift me up in their hearts and prayers!! 

Monday, February 21, 2011

For my most precious Saraibear....





Just the way you are by: Bruno Mars

Oh her eyes, her eyes

Make the stars look like they're not shining

Her hair, her hair

Falls perfectly without her trying

She's so beautiful

And I tell her every day

Yeah I know, I know

When I compliment her

She wont believe me

And its so, its so

Sad to think she don't see what I see

But every time she asks me do I look okay

I say

When I see your face

There's not a thing that I would change

Cause you're amazing

Just the way you are

And when you smile,

The whole world stops and stares for awhile

Cause girl you're amazing

Just the way you are

Her nails, her nails

I could kiss them all day if she'd let me

Her laugh, her laugh

She hates but I think its so sexy

She's so beautiful

And I tell her every day

Oh you know, you know, you know

Id never ask you to change

If perfect is what you're searching for

Then just stay the same

So don't even bother asking

If you look okay

You know I say

When I see your face

There's not a thing that I would change

Cause you're amazing

Just the way you are

And when you smile,

The whole world stops and stares for awhile

Cause girl you're amazing

Just the way you are

The way you are

The way you are

Girl you're amazing

Just the way you are

When I see your face

There's not a thing that I would change

Cause you're amazing

Just the way you are

And when you smile,

The whole world stops and stares for awhile

Cause girl you're amazing

Just the way you are






Winter photos

Worries and Medical update


I wanted to post an upate on the medical front today. For those of you that keep up with me you know that Feb. has been a tough month for me.  It all started with a cold brought home from daycare in late Jan. that turned into pneumonia and some other respratory issues.  I spent a night in the hosptial and 21 days on medication.  I have been off of all sickness related meds for about 10 days now.  I called Dr. Nic's office last week because so many of the things I am feeling now are mirroring what I delt with in Dec 2009 when I was dignosed.  I am EXHAUSTED to the point of being unable to keep myself awake at times, I have been having reoccuring abdomnal pain, horrible bruises, dizziness, headaches and general feeling of illness. So I figured why wait, call get it over with and make sure nothing else is going on.  So here I am on the 14th month milestone of my dignosis I will see Nic tomorrow, have blood work done and find out if I am still keeping the monster at bay.......

Sunday, February 20, 2011

Wanted to share my Year in review of AML photos


As I was working on updating this blog and rearranging my pictures on my computer today I came across several pictures I have taken of Sarai and I during the past 14 months of my treatments, thought it would be interesting to see them all lined up......


12.11.09 Showing off my new do

12.18.09 St Mary's after 4 blood tranfustions, still didnt know it was AML




12.28.09 admission day for chemo



12.29.09 showing off my port cath (day 2)

01.06.10 post induction (new do)

01.08.10 better shot of the new do

2.26.10  2nd round of chemo

03.01.10 going home after 2nd chemo

03.12.10 back in hossie 5th stay, sick

04.01.10 after 6th stay going home

04.13.10 4th round of chemo

04.17.10 going home after 8th stay, sick

05.07.10 start of 5th round 9th hospital stay

05.11.10 end of 5th and final round!!

05.15.10 post chemo enjoying the sun

05.27.10 home from 10th hospital stay


06.11.10 1 month post chemo 1 week post BMB REMISSION

06.18.10 my baby girl turned 3!!

07.11.10 2 months post chemo

09.21.10 4 months post chemo

10.31.10  5 1/2 months post chemo

11.08.10 6 months post chemo

02.07.11 9 months post chemo





I HATE my hair.............

This photo was taken the first day of chemo 12.28.09


I really took the whole hair loss thing in stride when I went through chemo... my only concern was that I not wake up with clumps of hair on my pillow or have to clean globs of it out of the drain when I went to shower or wash it. I made the decision 2 days into chemo to have a dear friend of mine, Matt, come and just shave me flat bald. My only regret has been that I did not think to save and donate my hair.... When I was dignosed I had JUST (as in days before) splurged on a cut color and style. I loved my hair (tho many use to tease me about my color choices)


I delt well with my baldness, despite how cold it made me, it never really bothered me that I didnt have hair. I wore hats and scarfs because P was pretty embarassed by it but really I could care less. It was like a war badge I wanted everyone to know that I was fighting and winning.


Well now I can say that I hate my flippin hair I mean HATE it. It's at that stupid stage where it wont grow back fast enough. I cant tie it up and my "bangs" if you can call them that look like I put them in those squishy rollers and slept in them for a month. ARGGGGHHHH All I ask for is a pony tail!!!






This photo was taken aprox 14 months after I shaved my head
Feb 2011
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